'O time, thou must untangle this, not I.
It is too hard a knot for me to untie!'
Twelfth Night - act II sc ii
I am not just a collection of interconnecting muscles, nerves, blood vessels and bone. On its own my body is a miracle of complex engineering, but within this body there are many complex chemical and electrical interactions and reactions all with different functions - perhaps I could see these as the fuel and lubricant which ensures the machinery keeps working effectively - there are hormones which determine my readiness for creating children, my moods, my appetite. Then there is the product of my mind, my thoughts, the core of who I am. This is indefinable in purely physical or chemical terms, although some argue that even the most complex of human interactions are just the result of biochemistry, I tend towards believing that there is something intangible, the essence of who I am, which I call the Human Spirit, or soul, so there is a spiritual side to consider.
When I consider all three aspects of who I am I recognise that there is no part of me that does not impact on the others. So when I fall over in the street, which I did recently, it is not just my hand which is hurt. That, it has to be said was the first part of me to connect with the shock of hitting the ground. In short succession, physical pain, was followed by a wave of grief - I wanted to cry. Then I caught sight of the shocked faces looking out of the bus window as it passed. Grief was replaced by embarrassment and then shame. Then my personality came to the fore as a kind passerby offered some help and I waved her away and too quickly got to my feet. The blood in my circulatory system was unable to keep up with what I, as me, wanted to do, so I nearly collapsed again, the physical working in opposition to my spirit. You get the idea - if anyone had asked me what part of me was hurting I could answer, honestly; my hand, my shoulder, my ribs, my knees, my pride, my sense of independence, my self confidence, my conscience (guilt for refusing a helping hand). Had I been taken for medical treatment only those parts of me which were evidently hurt would have been treated.
Too often we experience health services which treat only one aspect of our person. So we treat the 'flu, but neglect the emotional impact of feeling drained physically. The plaster cast, sets the bones and supports physical healing, but the emotional cost of a physical trauma is neglected until it becomes unavoidable.
I have been thinking about this silo approach to well being recently in regard to mental health and disability. Too often services and benefits tend to separate physical disability from mental illness or emotional challenges. This is why so many disability assessments have been running into difficulties and result in so many appeals which are overturned nearly 70% of the time. The reality is that 'seen' difficulties are the most easily identified and therefore treated or managed. It does not require a hard pressed NHS service to take time to investigate or have to spend time on treatment when presented with bruises or broken bones. When presented with emotional or mental distress, time is required as well as to change the approach from 'What is wrong with you?' to 'What is causing so much distress?'. The first question allows the professional to decide how to fix the problem, the second question opens up the need for a more long term intervention. Often Mental Health interventions are time limited when mental health issues require time and relationship, something that a six week hourly intervention cannot offer.
The thing is if you can help me to manage my emotional and mental responses to the physical pain or trauma I have experienced it is more likely that the physical therapies and interventions are likely to help me recover from or manage my physical challenges. Equally if you can help me address the physical causes of my exhaustion then I am more likely to be able to manage feelings of depression and anxiety.
I have been reflecting on my own recovery in these terms and recognising that persevering with looking after my physical health will help me to continue to manage my mental health. It is common sense, it also makes financial sense when applied to a resource-and-time-poor NHS. Yet I have to piece my recovery plan together from different silo'd teams under my own initiative. I am effectively the wellness hub for my own recovery.
When I worked within criminal justice I was privileged to be part of an multi-disciplinary team made up of police, nhs, probation and charities staff each working with individuals to address the complex factors which were stopping them from reforming and ending their offending careers. As long as an individual undertook to manage their own offending behaviour, our team would provide a range of support to help them with housing, employment, substance misuse, education etc. It was effective and when the people we were targeting were responsible for 80% of local car, thefts and burglaries was arguably an excellent investment. Even with the costs involved it was still cheaper than prison for most of the people we worked with.
What do I learn from this when applied to health? Well first there was a concept of 'end to end management' from the point of arrest to the point of end of sentence. Our team picked people up and worked with them through court, into prison, out of prison and to the end of licence or community sentence. If they re-offended they came back to the same team to begin again.
What if health and social care teams in hospitals and the community were integrated and worked in the same place? What if every person who has undergone significant surgery, or who is managing a significant physical disability has access to evidence based mental health well being practices as part of their recovery? What if mental health was seen as part and parcel of recovery from significant physical illness? What if we stopped separating off mental health units from the rest of the hospital except for those requiring the most intensive mental health support? What if we actually practised our interventions on both physical and mental health as if there were parity of esteem? What then?
Reflections on life with BPD. Experience of using DBT to manage ESPD/BPD symptoms. Wanting to connect and encourage others struggling with Mental Illness. Stop the Stigma - the best way to learn about my Mental Health is to ask me about it...
Showing posts with label Recovery Journey. Show all posts
Showing posts with label Recovery Journey. Show all posts
Tuesday, 24 October 2017
Tuesday, 30 August 2016
On Superheroes, Mindreading and BPD
I have just completed a week in which I transformed myself into a superhero. The hardest part was to come up with my 'superpower' - in the end I opted for the title 'SuperConfused' with my super power being the ability to sow confusion wherever I went. It was quite a wheeze! In case you're wondering, it wasn't an experimental therapy option being trialled near me, it was in pursuit of entertaining 30 odd (sometimes in both meanings of the word) children aged 5-11 for a week of the summer holidays. Yes, I know volunteering is a funny old world!
I'm a reflective soul. Some may call it navel gazing, but occasionally, it yields positive fruit. This time my reflection led me to the realisation that I have been living a double life as myself and my alter ego, the Amazing Mind Reading Woman. This came out most clearly during an overseas holiday in the company of my family and some friends in July.
I have written a previous blog about some aspects of this alongside the phenomenon known as 'Apparent Competence': http://bpdlifeinthemoment.blogspot.co.uk/2014/07/caught-between-two-minds-problem-of.html
Mind Reading as a feature of the symptoms of BPD (Borderline Personality Disorder) will be familiar to anyone living with or seeking to support someone who is emotionally sensitive. There are a number of aspects to this superpower of mine.
1) I know exactly what everyone is thinking about me. Especially when I am feeling stressed and/or emotionally vulnerable this 'superpower' is at its most potent. You see, I know that everyone around me is judging me and at times, loathing me, because that is what I am feeling and thinking about myself, and, my reasoning (confused by the power of emotional waves crashing over me) is that in that moment everyone around me can see right into my rotten core. It is a feeling of emotional and mental nakedness and can appear like paranoia, but in that moment I can have such belief in my mind reading 'abilities' that reassurances will seem to be 'flannel' and so much nonsense, as no one can possibly not recognise what I recognise about myself in those moments. Of course you have to be thinking that. If you struggle to understand the power of this 'ability' think about the number of times you have attributed motives and emotions to inanimate objects as well as total strangers: 'That lamp-post deliberately jumped out of nowhere and hit me smack in the face.' Or 'That driver in the fast lane thinks he's so much better than me, I'll show him.' Ok, so much nonsense which can be easily reasoned away. What if that level of conviction about the ability to see into others motives and thoughts is coupled with the most powerful of negative emotions?
How do we make sense of the world?
It is my understanding that we begin with our physical senses, sight, hearing, touch, taste, smell. We build up an understanding of the world around us through these physical experiences. So far, so simple. Through time we build up a bank of sights, smells, tastes, sounds as our experiences widen. What if we couple these experiences with emotions. For example, sights (a beach), tastes (ice cream, chips) coupled with a feeling (happiness) means that I can evoke a visual memory of happiness just by walking by a chip shop. What if our sense of what we perceive around us is affected by negative emotions? It follows that our emotions lead and overwhelm our physical senses of what is going on in the present moment, so whilst others around us may be oblivious to our internal meltdown, we are living the equivalent emotional response of a disaster movie. While most people may experience the same stressful situation as me, both their immediate response and the length of time it takes to recover from the feelings of anxiety and stress will not be as powerful nor last as long. So, within a couple of hours of missing a flight all my travel companions can be asleep, while I remain wide awake while adrenaline courses round my body, reignited by catastrophising thoughts and heightened emotions. Paranoia about the different experiences between me and my friends, triggers my mind reading tendencies which may continue for several days as I perceive judgement and disapproval - an echo of my own thoughts about myself.
2) All the Bad things in the World are centred on Me One of the paradoxes of low self esteem is that I can convince myself that everything bad that happens is because of something I have thought or done. How's that for a superpower? This sometimes links into my ability to read minds in that I assume everyone will be blaming me. I have apologised for a stormy day before now. Either this is faulty thinking deeply affected by overwhelming feelings of unwarranted guilt, or I am suffering from some as yet undiagnosed form of megalomania!
3) If YOU cared for Me/Were any Good at YOUR Job, you would be able to read my mind! This is the part of my superhero persona which, I think, provokes fear and loathing in others. I will sit at home, or in your office, A&E, wherever, in abject distress and expect you to work out a) how far down I am feeling b) if you should intervene c) how you can help me. Most of the time I am so overwhelmed with distress that all I want to happen is for it to stop. This I know is daunting to anyone dealing with me in these moments. How much of a risk am I to myself/others/you? For me, that answer is, just help me feel safe until the feelings pass.
I've written before of how challenging my behaviour could become in the past with mental health professionals who I had a habit of 'testing'. This resulted in me presenting as functioning on all evident levels, but expecting those trying to help me to be able to read what was going on, under the surface. 'Failure' would result in me going away and pressing self destruct in some more 'obvious' way. Deeply unfair, and likely to perpetuate the feeling of being manipulated by me. For me, those who managed to get past this stage were those who were able to take time to listen, who were allowed to assess me over a period of time and, above all, those who were honest about their limits. 'No one can change your past hurts.', 'I can't stop you feeling this bad about life', 'life sucks'. Reality and honesty have been the best tools used in helping me build therapeutic relationships.
In friendships and relationships I am challenging to love to say the least. My silence can be a gauntlet thrown down to challenge you to demonstrate a) how much patience you have b) how much you really love me, especially when I am not communicating c) Whether all the failed and failing relationships of the past, are really in the past, or if I can push you to reject me too. As with the professionals who have had to work with me, I can expect you to be able to read my mind. In the end, sticking to boundaries and being consistently straight and practical is better than joining me in my emotional morass.
Thankfully, I have not lost any friends for a number of years, either I've changed or people are more accepting of me. Another, thing that has changed is that I no longer tolerate 'bad' friendships or relationships which are not good for me or my emotional health. I don't have to invest in damaging relationships for fear they will be the only people who could care for me.... recognising that any level of abusive behaviour, does not constitute love. Actions do speak louder than words where this is concerned!
How do I get myself out of the Mind Reading loop?
1) Stop the physical symptoms of anxiety/anger. There are a number of techniques which have helped. The one tool I carry with me all the time is my breathing. If I can slow myself down by practising mindful breathing, this helps me regain control of my emotional responses. Another technique which is more of an immediate shock to bring my heartrate down is to plunge the whole of my face (right to the edge of my ears) into freezing cold water. If there isn't the means to do this, it helps to carry a freeze pack in my handbag which when held to my eyes for up to two minutes (or as long as I can stand it), has the same immediate effect.
2) Use my Senses to focus on my immediate surroundings. It helps to maybe suck a sweet and focus on the sensations, taste etc.
3) Identify the feelings. If I can name them, I have a number of DBT strategies I can use to manage them, until they subside.
4) If I have a relationship of trust, check out the reality of my beliefs about what others are thinking.
The times when I find myself mind reading have lessened over the past few years. However, life has unexpected twists and turns and sudden changes/crises may result in me assuming the superhero in me must be right about what is going on in your head. Every now and then I need to be remember that superheroes are for comic books and that I am not the Centre of the Universe, nor am I the Carbuncle of the Cosmos around which everyone and everything revolves - which means I am not personally responsible for tornadoes in Oklahoma, or the dodgy schedules of international airlines!
I'm a reflective soul. Some may call it navel gazing, but occasionally, it yields positive fruit. This time my reflection led me to the realisation that I have been living a double life as myself and my alter ego, the Amazing Mind Reading Woman. This came out most clearly during an overseas holiday in the company of my family and some friends in July.
I have written a previous blog about some aspects of this alongside the phenomenon known as 'Apparent Competence': http://bpdlifeinthemoment.blogspot.co.uk/2014/07/caught-between-two-minds-problem-of.html
Mind Reading as a feature of the symptoms of BPD (Borderline Personality Disorder) will be familiar to anyone living with or seeking to support someone who is emotionally sensitive. There are a number of aspects to this superpower of mine.
1) I know exactly what everyone is thinking about me. Especially when I am feeling stressed and/or emotionally vulnerable this 'superpower' is at its most potent. You see, I know that everyone around me is judging me and at times, loathing me, because that is what I am feeling and thinking about myself, and, my reasoning (confused by the power of emotional waves crashing over me) is that in that moment everyone around me can see right into my rotten core. It is a feeling of emotional and mental nakedness and can appear like paranoia, but in that moment I can have such belief in my mind reading 'abilities' that reassurances will seem to be 'flannel' and so much nonsense, as no one can possibly not recognise what I recognise about myself in those moments. Of course you have to be thinking that. If you struggle to understand the power of this 'ability' think about the number of times you have attributed motives and emotions to inanimate objects as well as total strangers: 'That lamp-post deliberately jumped out of nowhere and hit me smack in the face.' Or 'That driver in the fast lane thinks he's so much better than me, I'll show him.' Ok, so much nonsense which can be easily reasoned away. What if that level of conviction about the ability to see into others motives and thoughts is coupled with the most powerful of negative emotions?
How do we make sense of the world?
It is my understanding that we begin with our physical senses, sight, hearing, touch, taste, smell. We build up an understanding of the world around us through these physical experiences. So far, so simple. Through time we build up a bank of sights, smells, tastes, sounds as our experiences widen. What if we couple these experiences with emotions. For example, sights (a beach), tastes (ice cream, chips) coupled with a feeling (happiness) means that I can evoke a visual memory of happiness just by walking by a chip shop. What if our sense of what we perceive around us is affected by negative emotions? It follows that our emotions lead and overwhelm our physical senses of what is going on in the present moment, so whilst others around us may be oblivious to our internal meltdown, we are living the equivalent emotional response of a disaster movie. While most people may experience the same stressful situation as me, both their immediate response and the length of time it takes to recover from the feelings of anxiety and stress will not be as powerful nor last as long. So, within a couple of hours of missing a flight all my travel companions can be asleep, while I remain wide awake while adrenaline courses round my body, reignited by catastrophising thoughts and heightened emotions. Paranoia about the different experiences between me and my friends, triggers my mind reading tendencies which may continue for several days as I perceive judgement and disapproval - an echo of my own thoughts about myself.
2) All the Bad things in the World are centred on Me One of the paradoxes of low self esteem is that I can convince myself that everything bad that happens is because of something I have thought or done. How's that for a superpower? This sometimes links into my ability to read minds in that I assume everyone will be blaming me. I have apologised for a stormy day before now. Either this is faulty thinking deeply affected by overwhelming feelings of unwarranted guilt, or I am suffering from some as yet undiagnosed form of megalomania!
3) If YOU cared for Me/Were any Good at YOUR Job, you would be able to read my mind! This is the part of my superhero persona which, I think, provokes fear and loathing in others. I will sit at home, or in your office, A&E, wherever, in abject distress and expect you to work out a) how far down I am feeling b) if you should intervene c) how you can help me. Most of the time I am so overwhelmed with distress that all I want to happen is for it to stop. This I know is daunting to anyone dealing with me in these moments. How much of a risk am I to myself/others/you? For me, that answer is, just help me feel safe until the feelings pass.
I've written before of how challenging my behaviour could become in the past with mental health professionals who I had a habit of 'testing'. This resulted in me presenting as functioning on all evident levels, but expecting those trying to help me to be able to read what was going on, under the surface. 'Failure' would result in me going away and pressing self destruct in some more 'obvious' way. Deeply unfair, and likely to perpetuate the feeling of being manipulated by me. For me, those who managed to get past this stage were those who were able to take time to listen, who were allowed to assess me over a period of time and, above all, those who were honest about their limits. 'No one can change your past hurts.', 'I can't stop you feeling this bad about life', 'life sucks'. Reality and honesty have been the best tools used in helping me build therapeutic relationships.
In friendships and relationships I am challenging to love to say the least. My silence can be a gauntlet thrown down to challenge you to demonstrate a) how much patience you have b) how much you really love me, especially when I am not communicating c) Whether all the failed and failing relationships of the past, are really in the past, or if I can push you to reject me too. As with the professionals who have had to work with me, I can expect you to be able to read my mind. In the end, sticking to boundaries and being consistently straight and practical is better than joining me in my emotional morass.
Thankfully, I have not lost any friends for a number of years, either I've changed or people are more accepting of me. Another, thing that has changed is that I no longer tolerate 'bad' friendships or relationships which are not good for me or my emotional health. I don't have to invest in damaging relationships for fear they will be the only people who could care for me.... recognising that any level of abusive behaviour, does not constitute love. Actions do speak louder than words where this is concerned!
How do I get myself out of the Mind Reading loop?
1) Stop the physical symptoms of anxiety/anger. There are a number of techniques which have helped. The one tool I carry with me all the time is my breathing. If I can slow myself down by practising mindful breathing, this helps me regain control of my emotional responses. Another technique which is more of an immediate shock to bring my heartrate down is to plunge the whole of my face (right to the edge of my ears) into freezing cold water. If there isn't the means to do this, it helps to carry a freeze pack in my handbag which when held to my eyes for up to two minutes (or as long as I can stand it), has the same immediate effect.
2) Use my Senses to focus on my immediate surroundings. It helps to maybe suck a sweet and focus on the sensations, taste etc.
3) Identify the feelings. If I can name them, I have a number of DBT strategies I can use to manage them, until they subside.
4) If I have a relationship of trust, check out the reality of my beliefs about what others are thinking.
The times when I find myself mind reading have lessened over the past few years. However, life has unexpected twists and turns and sudden changes/crises may result in me assuming the superhero in me must be right about what is going on in your head. Every now and then I need to be remember that superheroes are for comic books and that I am not the Centre of the Universe, nor am I the Carbuncle of the Cosmos around which everyone and everything revolves - which means I am not personally responsible for tornadoes in Oklahoma, or the dodgy schedules of international airlines!
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